Bens Friends Blog

We build patient communities for people with rare diseases. Find us at BensFriends.org and email us your amazing stories at storiesbensfriends.org.

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LINKS TO WEBSITE

Acute Disseminated Encephalomyelitis ADEM-Online Support Group

Since site content and usernames are google searchable, you may protect your anonymity by creating a unique username. To change your username, click here. Please help regarding seizure med.

A Journey of Veins

The current obsessions and ramblings of a 20-something year old. A rosé on a Saturday. Posted on May 8, 2015. Posted on May 8, 2015. Posted on May 8, 2015. Via my father will hear about this. The great flood of countdown quay st. Posted on May 1, 2015. Posted on April 25, 2015.

Amyloidosis Support Network - Online Support Group

If your family has been affected by Amyloidosis, consider Amyloidosis Support Network your second home. Since site content and usernames are google searchable, please protect your anonymity by creating a unique username.

Living With Congenital Heart defects - A Bens friends Patient Community

Since site content and usernames are google searchable, please protect your anonymity by creating a unique username. No personal attacks or defamatory posts. Specific doctor or hospital names in a positive context are welcome.

AVM Survivors Network

We are AVM survivors, here for your support. 3 Post to a Discussion. Since site content and usernames are google searchable, you may protect your anonymity by creating a unique username. To change your username, click here. No email addresses or phone .

Chiari Online Support Group

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Ataxia Support Network

Check the Help tab above. Since site content and usernames are google searchable, please protect your anonymity by creating a unique username. LivingWithAtaxia is a peer-to-peer network. To get support, give support. Have a question, concern, or suggestion? Or would you like to volunteer? Please send a private message to a moderator. Spinocerebellar Ataxia a short story.

Alcohol.its the new glue!

I have alcohol running through my veins! Literally. Thursday, April 28, 2011.

WHAT DOES BLOG.BENSFRIENDS.ORG LOOK LIKE?

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BLOG.BENSFRIENDS.ORG SERVER

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Bens Friends Blog

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We build patient communities for people with rare diseases. Find us at BensFriends.org and email us your amazing stories at storiesbensfriends.org.

PARSED CONTENT

The site blog.bensfriends.org states the following, "Ldquo; Thank you for the welcome, Im grateful." I noticed that the webpage also said " Myositis - Online Support Group." They also stated " Myositis - Online Support Group. Myositis - Online Support Group. Ldquo;Thank you for the welcome! I havent been given a formal diagnosis but just found I have an elevated Jo 1 antibody so I guess I have some form go myositis. Im going to Mayo in May for further evaluation! Myositis - Online Support Group. Myositis - Online Support Group. Myositis - Online Support Group." The meta header had myositis as the first keyword.

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